VP's...OK...now Brenda's REALLY PISSED!!! Since Wednesday morning we have been struggling with the dreaded feeding tube AGAIN!!! She began throwing up after we introduced either meds, water or food through that damn tube. Now it didn't do it all the time, and although the symptoms were just a tad bit different, you get real intuitive with this stuff and we KNEW that it's that blasted tube once again.
We jumped on everyone last night with voice mails and then showed up personally after Bren was finished with her morning radiation. Mary and Denise have been sensational...we wanted to get the tube changed. Here's what we learned after talking with the doctor that we really should have had put this *#%^&$ device in.
Because the tube has not been in for a period longer than 6 weeks...the scar tract between the stomach and the outside layer of skin has not completely formed. Because that hasn't formed they can't change the tube yet. There was the option of trying to place a different connection but that was iffy because of the tube placement and they wouldn't know if that was possible until they did an X-Ray. So the only real alternative was to go back to IVR and have then reflip the tube. I probably don't have to tell you the words Brenda had for that alternative. She is absolutely beyond frustrated with this.
So the absolutely pissed off, stubborn Brenda has decided that they can stuff this feeding tube where the sun don't shine...she has decided in true Brenda fashion that she's going to get her nutrition via mouth...NOT via the tube. So we use Vicodin to dull the pain in her throat and have visited the local GNC store for a Weight Gain powder that Denise recommended after we told her what Brenda wanted to try and do. Believe me folks...she'll do it...there is absolutely no doubt in my mind. Now the goal is to keep her weight up through these supplements taken by mouth and have the dang tube out around August 19th. I think we'll take it to the shooting range and use it for target practice. I was rated as an expert marksman during my law enforcement career so there's no doubt in my mind that I'll make swiss cheese out of that tube!!!
So...Flipper's career is quickly coming to an end!! I've got to go back over to the clinic this afternoon and get a book they ordered for us called "Meals through a Straw." Frankly it doesn't sound very yummy to me but we're too close to the end of this and Brenda will not let anything stand in her way to go home on the 21st!
The good news is that Bren only has ONE MORE RADIATION TREATMENT and she rings the bell. We are so looking forward to Monday morning around 7:30 am. Set your alarm clocks and give a "holler" in celebration. Mary has already booked our return appointment for all the scans and tests on October 6th. So we'll have a nice bit of time to get our new lives established before we have to come back.
So there ya have it...just as there is in life...there's always something in this journey toward the CURE. The secret to both is being flexible, adjusting and adapting to the bumps and new paths in the road.
Thanks heavens for pain killers!!
A very frustrated Nurse Dee and a Pissed-off Brenda