VP's...now don't get me wrong...MD Anderson is a fantastic place full of true soldiers trying to eliminate cancer. They have again been voted the #1 cancer hospital in the US, but it's a huge place and somewhat understaffed. It's not like the cruise ship Paul Gauguin we were on when we went to Tahiti, where the ratio of staff to guests ensured that you were very well cared for in all aspects of the trip. But it does help to be an unhappy, VOCAL, caregiver...totally frustrated with the problems this damn feeding tube has caused.
But maybe I should back up and tell all you VP's that Brenda AGAIN began to have more problems (symptoms) with the feeding tube. She again began to have decreased tolerance of stuff through the tube...those same old smyptoms...upset stomach, sweating, and that just miserable "I'm going to barf" feeling. I knew that damn tube had flipped again and come hell or high water it was going to be checked and FIXED TODAY!!!!
I started making phone calls this morning and got the dang ball moving. I caused such a stink about Mr. Lucky being such a waste of time and wasting everyone's time that we have consistently been getting Emily and she has never been late...never!!! So when Brenda went downstairs for her treatment, I headed to the radiation doctors/nurses area to start rattling cages. It's always so much better when a plan comes together and it actually happened this afternoon. It sure helps when you arrive in PERSON and you've already been through this game before. We were going to get the tube fixed today!!!
And we did...in record time. It just shows that even in a big place...things can happen quickly when everyone works toward the same goal. We got Brenda back into Radiological Intervention and in no time they had checked the tube...yep! It FLIPPED AGAIN!!! GRRRRRR! Well they pulled it out another inch, flipped it back into the correct position and resutured it back into place. With driving from the main clinic to the Mays clinic where this department was, parking, and getting to the main floor...we were in and out in about 1 hour and 15 minutes...now that's what I'm talking about. Efficiency can happen at MD Anderson along with the CURE!!
So here we are again...the tube is working correctly and we've gotten some pain meds and food into our girl and now we're actually watching a movie...actually I think Bren is sleeping...she sure needs to after what she's been through. I sure hope and pray this tube stays were it's supposed to! Lord VP's...just send us positive vibes and all the positive energy you can spare. Maybe with all you help we can keep the damn tube in place.
Just wanted to give you all the latest saga in the road to the cure...it has certainly not been without BUMPS!!
Nurse Dee and puny Chemo-sabe