Morning VP's...Houston Central here. After much, much trial and error, some well placed complaining to key folks and the help of good ole Vicodin, we might be on the right path to get poor Chemo-sabe through these next 3 weeks. Man! Has this been an ordeal.
Monday, Mary called us to check on Brenda after the melt-down that our poor Chemo-sabe had Friday...a horribly long, tedious day. This really says a lot about Mary and how closely she is monitoring Brenda...Mary is on vacation and still called to see how things were going. Now folks...that's dedication to her patients welfare. She is really dedicated to making this path as easy for Bren as possible. Unfortunately...or fortunately...I answered the phone and gave her an earful. Those of you that know me know that I have a tendency to be rather blunt (30 years of police work and way too many years in police management!! Ha!) so when I turned the phone over to Brenda...Mary already had the total idea of what we were dealing with. I filled her ears with our complete displeasure with Mr. Lucky among other things.
Well that prompted a call to the BIG MAN...Dr. Hong...who called Dr. Schwartz...who called his PA...who immediately called us back. That total chain took about 15 minutes!!! It's amazing what happens when you call the RIGHT folks. Thank heaven that Brenda is Dr. Hong's patient...thank you Amanda and friends!!! Although they were late again with Radiation, we did talk at length with Leah, Dr. Schwartz's PA about the horrific back-up that Lucky causes for ALL the radiation patients. We did find out that the techs changed shifts and I think we might have Emily back...she is great and can actually do more than one thing at a time and can look at the schedule and predict when we should come in to minimize the wait time. Thank you Emily!!!
After seeing Leah, we also got some new meds that will help Chemo-sabe digest her food better and a mouthwash that will help numb her mouth so the stent will ease the gagging response she is developing during radiation because her mouth is loosing elasticity. Poor Bren is definitely entering the most difficult and painful part of her treatment. It just breaks my heart to watch her endure all this. You just can't imagine! We have started giving her Vicodin to take the edge off all this pain and that seems to be helping. She actually got a half way decent nights sleep, but she now can't breathe through her nose because it's all swollen and her mouth is so dry that she wakes up and has to rinse her mouth out with water...it's just a vicious cycle of misery right now.
So here we are on Tuesday morning...we got her meds in her through the tube. We have most things in liquid form and I crush the pills for the stuff that's not liquid. We also have the first can of food in and will hope that we can get another 5 cans in throughout the day and evening. We're behind the power curve and can't loose any more ground. She's sleeping now and that's a good thing. The Vicodin should help take the edge off her extreme discomfort. Man! This is brutal...that's all I can say.
We only have radiation today...hopefully...so we can spend the day getting the food and meds in. Please keep those prayers coming...positive energy flowing...and comments on the blog...it truly brightens her day.
OK...so here's a note on Mr. Hotpants...we're really not sure there is a Flo up there!! HUMMMM! Hotpants must be a young man or sexually frustrated!! Yep...he was at it again last night! LORDY! At least he did his "THING" at 11:00 pm and not 2:00 in the morning. Ya just gotta laugh! Vic...I like your idea about taping Mr. Bojangles to his door...but we enjoy Mr. Bojangles hanging out in the breakfast nook!!!
Have a great day where ever you are.
Nurse Dee and a sleeping Chemo-sabe