ZZZZZZZZZZZ...OH! Hi VP's...sorry just dozed off a bit...thank heavens Chemo-sabe is fast, fast asleep. We got there at 7:00 am and didn't get out of there until after 6:00 pm. We've had longer days, but the radiation and the recent placement of the feeding tube has really exhausted our gal. The transition to the tube feeding is not going as smoothly as we'd hoped. You're right Toni...that gas and bloated feeling are making poor Chemo-sabe miserable...and on top of chemo and the ongoing and worsening side effects of radiation...this isn't good. I went up and talked to the dietician about the problems we're having getting poor Chemo-sabe's wacked out system going and we're going to try Part 1 of a new strategy to see if we can make her more comfortable. We found out that some of the meds she started using can cause this feeling and we might have to switch the canned food to see if she can tolerate another one without soy. First we have to get a stubborn system moving. Let me NOT be more graphic on this one!! Lord! There is NO dignity in cancer treatments.
Michele...I DID ask if the chemo nurses would do Brenda's feeding and the answer...although very polite...was a big fat...NO!!! I was thinking that would probably be the answer so I brought the cooler with the supplies. I had to keep the bag and stuff cold so the nasty germs won't grow so I really did look I was going on a camping trip when we walked into MD Anderson this morning. I did get some stares...I don't blame them at all.
Don't expect a blow by blow on tonights activities...it won't be pretty...just let your minds wander. Tomorrow is another early day...we have to be there at 7:15 am. The chemo infusion should be about 5 or 6 hours. We get to go back to the apartment so Bren can take a nap and then we go back at 5:30 PM for radiation. Wednesday will be a long one. Your positive energy is helping...please keep it coming. Wednesday marks the half-way point in her radiation treatments. There really is a dim light at the end of this tunnel!!!
More tomorrow...sleep tight.
Nurse Dee and a very pooped (OOPS! No pun intended!!! Ha!)