Hi VP's...You can't imagine how trashed we were when we got back to the apartment last night. With the blood draw, the long chemo infusion, going for the radiation "dry run" and all the WAITING associated with those treatments made it a 12 hour day. You'd think that just sitting around and walking from place to place wouldn't be so tiring, but it's absolutely exhausting. Brenda handled it...like everything along this journey...like a real trooper. She got her naps in and that really, really helps. Thank heaven for all the wonderful medicine that she takes that help her sleep, ease her anxiety, and keep her stomach and other side effects under control. To all you health care professionals out there...you have our unwavering love. We couldn't do what you do on a permanent basis and we have a deep respect for all that you do. Thank you from the bottom of our hearts for your dedication to helping people with their illnesses. You rock! Please keep doing what you're doing!
So today was another LONG one but we got a break in the middle. We ended up squashed in what I think was the smallest chemo treatment room they have at MD Anderson. Now those of you that know us, know that we are "gear girls" so it was quite challenging for me to get all our stuff organized in that tiny room. Maybe I should look at this like an MD Anderson compliment that we are small women so we could fit nicely in a small room...yea! That's it! Ha!
They got Brenda's chemo going. It's a 5 hour treatment today. We actually got out about 1:30 PM and we went and had some Meditterean food at a place called Skewers...not bad. It was fun to eat some place besides the hospital. So after that we went home and I absolutely crashed out on the bed for 3 hours. I think I'd still be there but I had to get up to get Bren to her first real radiation treatment. Since Bren had such a good nap during chemo...like a good 2+ hours, she played her slots on the iTouch (more on that later Michele), talked with a friend, read her e-mail and took another shorter nap before we went for the evening appointment.
OK so we motor over to the Radiation Treatment Center for our 6:30 PM appointment. Mind you, this is only supposed to take an hour tops. Well, something on the machine wasn't quite right for the guy in front of us so they had to fix that which caused us to wait an hour before they got her in for the actual treatment. There's a tremendous amount of waiting in this journey. We're both trying to put it to good use. Brenda is very competitive and is determined to beat Michele in Slots. I'm catching up on some reading. So we got out of the treatment center about 8:15 PM and Brenda wanted to treat herself to an ice cream bar so we drove to the grocery store for a box of Eskimo Pies!!! YUM!
She said the treatment wasn't bad, but this is only day 2. Her eyes were closed, the mouth stent was in, the face mask was on and she's strapped down so she doesn't move. She said she could see lights through her closed eyes moving around and could sense the machine was changing it's beam to radiate the different areas that need to be zapped. We're both visualizing "shields" around the critical areas that need protection and exposure to all the cancer cells. We'd love if you'd help us visualize that for her as well.
Brenda went through the "Daily Self-Care" chart I made this morning and did the rinses and fluoride treatment that she has to do before going to bed. You might laugh and say...Man! That Nurse Dee is really taking her nursing duties to a new OCD level. HA! That's true, but if you saw how many things Brenda has to do DAILY...multiple times daily I might add...I think you'd make some type of chart too. It's amazing!!! And most of these she will have to do the rest of her life so the faster we develop the habits, the better. Thank heaven she is such a complient patient...God Love Her. This really could be a nightmare with some stubborn folks!
So now let's talk SLOTS!!! Brenda started yesterday with $2000.00. She was at about $1200 last night at the check-in time. Since Michele said she hit the big 7's, Michele might have won last night's round but I'm still waiting to hear how she did. Michele, Jodie, and Jackie, I have to warn you that before Bren went to sleep last night, she hit the big triple 7's betting the max amount which added up to 10,000 credits. It's 10:15 PM and she's at $4012.25. How's everyone else doing?
Tomorrow will be a little longer than today because after chemo we have to see the radiation doc at 2:30. Then we get to come home and then back for radiation at 6:30 PM...that time really messes up dinner!! Oh Well! It is what it is!
Sleep tight everyone...more tomorrow.
Nurse Dee and Chemo-sabe.