So let me tell you about this morning. Brenda made it to her 8:00 am dental appointment. The wake-up call just came way too early...UGH!!! They took an inventory of her teeth in anticipation of the targeted radiation that will come later. She got all sorts of instructions and info on what she will expect during the radiation process and what she'll have to do for the rest of her life to ensure she doesn't get an infection. We are learning soooooooooo much. This is all VERY precise.
Amanda and I were running around getting packed up and checked out of the hotel. She really has time management down to a science. Under her expert direction, we actually got checked out and made it to Starbucks for our morning coffee and made it to MD Anderson for our appointment with Dr. Hong exactly ON TIME!!! It truly was a thing of beauty.
So our appointment with the big man arrived and we were ushered into an exam room to await the news on treatment and whatever else he could tell us about this journey. He came into the room and I stopped breathing...just in anticipation of another rabid sky dive. He's just such a soft spoken, warm guy. So let me get right to the news...he said that she in fact had an intermediate grade neuroendocrine carcinoma the type of which they have treated before with success. He said that this was treatable and potentially curable cancer, but the road would be long and tough and would require constant monitoring. He actually said that no one wants cancer but if you had to get it, this type was better treated than some like lung, pancreas, or kidney cancer...AMAZING!!! I was actually starting to breathe and realized that the air would not get sucked out of the room and we weren't going sky diving today...AMEN!!! He wanted to start treatment immediately. Here's what treatment looks like for now:
He wants Bren to undergo 3 rounds of chemo at a high dose of the specific meds they were using for this cancer. (They actually developed the specific meds here at MD Anderson and everyone is using this routine...we're definitely in the right place!!!) Then they would lower the chemo dose, do more, but add targeted radiation in her sinus area to get all the hanger-on cancer cells (those are medical terms!!!) Adjustments will be made as he sees how the tumors in her neck are responding to the chemo. If anything is left after that, they'll do surgery to clean things up. This sounds a whole hell of a lot better that just slicing and dicing Brenda's beautiful face and head doesn't it?
We were so happy with this news we cried...there's definitely tons of hope with this message. Ain't it a thing of beauty?
So chemo wasn't going to start until 4:30 PM which meant that we had time to take our angel to the airport, run around and do errands, eat some lunch, and then move into the apartment. Things again were falling into place.
Amanda...thanks again from the bottom of our hearts for wrapping us under your wings, making us laugh, letting us cry, and offering so much knowledge and support to this damn scary process. To say you have been a life saver doesn't do justice to your generosity. We also love those fabulous naughty stories you shared...your secret is safe with us girlfriend!!
To all our villagers who have blogged back...thanks much. We LOVE to read your comments and I read them to Bren and we get warm feelings of love and have a laugh. You are the best so PLEASE keep the blog comments coming. It's so good to hear from you all.
Magyver...thanks for thinking of all the mechanics so folks can comment and for giveing such great detailed instruction on how to post. If we ever get stranded someplace, we definitely want to be with you!! We'll bring the duct tape and paperclips. You truly make us smile.
Toni...the "Hang on to your tits ladies..." couldn't be more perfect. We have the BEST sports bra ever!!! I'll give you a call and we'll coordinate our nurse duties and travel plans.
So here we are for the next 7 hours!!!!...things are going relatively well except for the fact that all the techs have such a damn hard time getting an IV started. Thanks heaven they are going to put in a "port" next week so that access will be so much easier and poor B won't feel like a damn pin cushion. You all know how she LOVES needles...NOT!!! We'll get back to the apartment around midnight give or take and I can only hope we don't have an 8:00 appointment...we need some good sleep badly.
Stay tuned for more info...pray the dang plane stays on the ground!!!
Love to you all...